Thursday, April 24, 2014

National Infertility Awareness Week

In America alone, one in eight couples will have trouble getting pregnant this year. Around 7.3 million women will struggle with infertility at some point in their life. You know these women. They could be your friends, your family, your co-workers or the the woman in line behind you at the grocery store. You are surrounded by these women everyday whether you know it or not. I am one of these women. Infertility is often brushed under the rug as a "private matter"; not something we need to bring to public attention. It is often regarded as something you aren't supposed to talk about or something you should be ashamed of. However, it is far to common now for us to simply go on pretending that it doesn't exist or that it doesn't affect every single one of us in some way.


Infertility is defined as the inability to conceive or carry a pregnancy to term after 12 months of trying to conceive. For some of us, we are able to overcome infertility with the help of medications or treatments such as IVF. However, that does not mean that our hope for future pregnancies won't be affected by infertility as well. In addition, women who have already had one of more successful pregnancies can also be affected by infertility at any time. No matter what the circumstance, infertility is scary and frustrating. For me, not knowing what was going on in my body or what to do about it was the most difficult part. All our lives, we are taught over and over again how to prevent getting pregnant, or what to do once we are pregnant. No one ever tells you what to do if you can't get pregnant, or prepares you for the possibility that you won't get pregnant like everyone else does. Everyone assumes that getting pregnant is easy and natural and that everyone can do it. Unfortunately, that is not the case.

Please take some time this week to educate yourself about infertility. Whether you already have your own children or not, someone you know is probably being affected by infertility and they might need your support. If you have never tried to conceive before, but you plan on having kids one day, I urge you to get informed. I pray that you will never experience infertility, but in the event that you do, I don't want you to be blind-sided like I was.

This website has a lot of good information about infertility awareness. Take a moment this week to tell the people you know who are suffering with infertility that you care. I understand that sometimes we don't always know what is really going on in people's lives, so I find it a best practice to not bring up the subject unless they volunteer the information first. I kept my infertility a secret for 18 months and I can't tell you how many people would come up to me on a regular basis and ask me about when we were going to start having kids. Obviously, they had no clue what we were going through or I'm sure they never would have brought it up, but that still didn't make it any less painful for me. So before you ask someone you know when they are planning on starting a family or adding to their family, stop and think before you bring it up.

If you know someone who has been open with you about their infertility, but you are unsure of how to best support them or what to say to them, I hope you find the article below helpful. I wanted to share this article because I literally had every single thing on the "not to say" list said to me during my fertility treatments and I know that it can be a very awkward and difficult situation to be in regardless of what side you are on.

25 Things To Say (and Not To Say) to Someone Living with Infertility

To Say:
1. Let them know that you care. The best thing you can do is let your infertile friends know that you care.
2. Do your research. Read up about infertility, and possibly treatments or other family building options your friend is considering, so that you are informed when your friend needs to talk.
3. Act interested. Some people don’t want to talk about infertility, but some do. Let them know you’re available if they want to talk.
4. Ask them what they need. They may also appreciate if you ask them what the most helpful things to say are.
5. Provide extra outreach to your male friends. Infertility is not a woman’s-centric issue; your male friends are most likely grieving silently. Don’t push, but let them know you’re available.
6. When appropriate, encourage therapy. If you feel your friend could benefit from talking to a professional to handle his or her grief, suggest therapy gently. If you go to therapy regularly, or ever have, share your personal story.
7. Support their decision to stop treatment. No couple can endure infertility treatments forever. At some point, they will stop. This is an agonizing decision to make, and it involves even more grief. 
8. Remember them on Mother's and Father’s Day. With all of the activity on Mother's Day and Father’s Day, people tend to forget about those who cannot become mothers and fathers. Remember your infertile friends on these days; they will appreciate knowing that you haven't forgotten them.
9. Attend difficult appointments with them. You can offer to stay in the waiting room or come into the appointment with them. But the offer lets them know how committed you are to supporting them. 
10. Watch their older kids. Attending appointments may be difficult if they have older kids at home.
11. Offer to be an exercise buddy. Sometimes losing weight is necessary to make treatments more effective. If you know they are trying to lose weight, you could offer to join them because it would help you achieve your personal fitness goals as well. 
12. Let them know about your pregnancy. But deliver the news in a way that lets them handle their initial reaction privately – email is best.

Not To Say:
1. Don't tell them to relax. Comments such as "just relax" create even more stress for the infertile couple, particularly the woman. The woman feels like she is doing something wrong when, in fact, there is a good chance that there is a physical problem preventing her from becoming pregnant.
2. Don't minimize the problem. Failure to conceive a baby is a very painful journey. Comments like, "Just enjoy being able to sleep late . . . .travel . . etc.," do not offer comfort. Instead, these comments make infertile people feel like you are minimizing their pain. 
3. Don't say there are worse things that could happen. Who is the final authority on what is the "worst" thing that could happen to someone? Different people react to different life experiences in different ways.
4. Don't say they are not meant to be parents. “One of the cruelest things anyone ever said to me is, ‘Maybe God doesn't intend for you to be a mother.’” Infertility is a medical condition, not a punishment from God or Mother Nature.
5. Don't ask why they are not trying IVF. Because most insurance plans do not cover IVF treatment, many are unable to pay for the out-of-pocket expenses. Infertility stress is physical, emotional, and financial.
6. Don't push adoption or another solution. So often infertile couples are asked, “Why don’t you just adopt?” The couple needs to work through many issues before they will be ready to make an adoption decision or chose another family building option.
7. Don’t say, “You’re young, you have plenty of time to get pregnant.” Know the facts. It’s recommended that women under 35 see a fertility specialist after being unable to conceive for one year. Being young increases your chance of fertility treatments working, but it does not guarantee success.
8. Don't gossip about your friend's condition. For some, infertility treatments are a very private matter, which is why you should respect your friend’s privacy. 
9. Don't be crude. Don't make crude jokes about your friend's vulnerable position. Crude comments like, "I'll donate the sperm" or "Make sure the doctor uses your sperm for the insemination" are not funny, and they only irritate your friends.
10. Don't complain about your pregnancy. For many facing infertility, it can be hard to be around other women who are pregnant. Seeing your belly grow is a constant reminder of what your infertile friend cannot have. Not complaining can make things a little easier for your friend. 
11. Don’t question their sadness about being unable to conceive a second child. Having one child does not mean a couple feels they have completed their family. Also, a couple may have had their first child naturally and easily but are now experiencing secondary infertility - infertility that comes after you’ve already had a child. 
12. Don’t ask whose “fault” it is. Male or female factor. Just because a friend has told you he or she is experiencing infertility as a couple, does not mean he or she wants to discuss the details.
13. On the other hand, don’t assume the infertility is female factor. 1/3 of infertility is female factor, 1/3 is male factor, and 1/3 is unexplained.

If you or someone you know if struggling with infertility, encourage that person to read blogs from other women who are going through the same thing. I found this extremely helpful, knowing that I was not the only one out there who was struggling and that it's ok to be scared and pissed off. I documented my entire infertility journey on my blog, so please share it with anyone who you think might find it helpful. This link will get you to all my posts about our journey. 

I am sending my love, prayers and a virtual hug to everyone out there who is currently struggling with infertility. You are not alone.

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